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What I’m Grateful For

Yesterday I blogged about the little things that I miss because of my M.E. Today I’m wanting to blog about the things I’m grateful for, that improve my life and make it worth living. First there’s...

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Playing With Technology

I’m still not doing great. Still bedbound, still can’t be propped up, still ridiculously light and noise sensitive, needing sunglasses to use tablet and feeling incredibly ill if the lamp is turned on...

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New Year’s Resolutions for 2013

I’m not having the best day ever today, pain being almost completely unbearable and feeling guilty over things that I probably shouldn’t, like Johan (or anyone) being I’m the room making me feel loads...

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Hair Be Gone

An update post! Christmas ended up being about as good as it could have been, considering I was still deep in relapse. I got my voice back, I opened lots of presents, we played Monopoly (Johan was the...

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Language Issues

Thanks to my ME and the brain fog and cognitive issues that come with it, I have a few issues with language that I never used to have. I forget words, muddle them up, say the wrong thing. I get a...

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Hello Matilda

I’m still stuck in bed. Sitting up isn’t working, moving is difficult and most of my symptoms (apart from light sensitivity) are still really bad. Because of this, we moved my desktop computer (called...

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Stuff That Happened

Danni in the hospital restaurant A quick update post, as a longer rambly post is beyond me. I’m not as bad as I was. Still nowhere near good, or the level I was in November before the relapse started,...

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Body Naughty

I wish my body would make some sense sometimes. I can watch Doctor Who and go on computer and play World of Warcraft. This is all yay! I feel okay so long as I don’t try and sit up or be touched. Not...

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Twilight Sparkle is Favourite Pony

I really like this photo of myself. Yesterday (Tuesday) I finally wore my wig, and I love it. I also got dressed and had my hair washed (took wig off for that). Had the best day I’d had in months so...

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Random Stuff I Can’t Think of a Title For

It feels strange that I’ll only be 26 for two more days. On Tuesday I turn 27. This is the first year I’ve felt like I’ve not really done anything of note- I got more ill and have spent more than half...

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Perfecting Bed Life

So, for the past few months I’ve spent nearly every moment in bed. It doesn’t look like I’ll be leaving it any time soon so I’ve been working on ways to make it work better for me. These are what work...

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I Like Nurses

Yesterday (Thursday) morning the district nurse came out at the request of my GP (if I’d been able to phone up I could have asked myself but I can’t and my carer didn’t get a great response last time)....

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Pan the (big) Purple Penguin

Danni holding Pan I’ve not blogged for a while because I’ve been finding it hard to think. I went into the care home and it went as well as could be expected really- didn’t get a bath because the newly...

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Computer Games are the Best Distraction

I have spent most of the last month playing computer games, which is good. Mostly World of Warcraft (enjoying Flexi with my guild and Timeless Isle stuff, and levelling a couple of new characters) but...

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Reading and Book Reviews

I love reading. I’ve been reading since I was two and it’s always been my biggest obsession. I can’t not read- if there are words, I have to read them (this can cause problems when I’m meant to be...

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Minecraft is Awesome

I think I might not be very well. The last few days I’ve needed extra meds, have spent most of my time asleep, and have felt rather more rotten than is normal for me. I feel bad as I’ve mostly been...

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WTB: Better Neighbours

Been trying to write a proper blog post for ages. Brain not working enough. Decided on a list instead to get things down. Blizzcon happened. Was amazing. Still not watched everything I wanted to (kept...

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New Year Resolutions for 2014

Fireworks in London to bring 2014 Another year has passed. I am not at all ready for the start of 2014, but time carries on whether I want it to or not. 2013 was a strange year for me. I felt mostly at...

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Improvement!

For some unknown reason, I’ve started improving. Not just the small improvements I normally get when coming out of a relapse though- I feel much stronger, and have so far sat on the edge of the bed...

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An Idea

So I had those really good days, and got to go outside. Then I had not so good days. At one point I thought I might be relapsing again but luckily it didn’t get that far. Still, I had some good days...

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